Centres of expertise for rare diseases
There are a number of centres of expertise in the Netherlands for the treatment of rare diseases. Using a search engine on the Orphanet website, you can find designated centres of expertise not only in the Netherlands, but also in other countries.
European Reference Networks
European Reference Networks (ERNs) are virtual networks involving healthcare providers across Europe. They aim to facilitate discussion on complex or rare diseases and conditions that require highly specialised treatment, and concentrated knowledge and resources. ERNs have already been launched on a range of thematic issues like bone disorders, haematological diseases and skin disorders. More ERNs will be established in the course of time. On the website of the European Commission you’ll find extensive information about ERNs and an up-to-date overview.
The European Commission has issued a flyer that explains what ERNs are and how they can help you. You’ll find this flyer on the right-hand side of this page under “Documents”.